Research

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FROM THE UNIVERSITY OF WESTERN SYDNEY

Do you have Mal de Debarquement Syndrome? If so, you are invited to participate in a research study being conducted by Dr. Cherylea Browne and Dr. Rachael Brown from Western Sydney University (WSU). This research aims to contribute to the understanding of the underlying mechanisms of MdDS. Specifically, this study seeks to collate data regarding the basic clinical features of MdDS, which might be unidentified or overlooked due to the subjective nature of the condition.

SURVEY 1

For motion-induced onset MdDS patients only . You are invited to participate in a research study being conducted by Dr Cherylea Browne and Dr Rachael Brown from Western Sydney University, Australia, in collaboration with Assistant Professor Mingjia Dai (Mount Sinai, U.S.A), Associate Professor Sergei Yakushin (Mount Sinai, U.S.A) and Dr Shaun Watson (Prince of Wales Hospital, Australia).  NOW OFFICIALLY CLOSED

SURVEY 2

We are currently recruiting 10 research participants to take part in a online longitudinal study.
If you fit the following criteria and are based in Australia, please contact c.browne@westernsydney.edu.au for more information.
1. You have had MdDS for at least 6 months
2. You are not on any form of hormonal contraception (e.g. oral contraceptive pill, nuvaring, implanon, etc.)
3. You are not pregnant or plan to be pregnant during the study
4. Your need to specify if your MdDS onset was due to a motion event (e.g. boat, car, plane, etc.)

Closed

SURVEY 3

For those with Mal de Debarquement Syndrome as a result of a non-motion event. Please click the link below. This survey will be open until 6th July 2017

CLOSED

Non-motion event

SURVEY 4

A Pregnancy and MdDS study (via an online survey).

This study seeks to collate data regarding the effects of pregnancy on MdDS symptoms. The aim is to collect survey data from MdDS patients who are currently pregnant or who were pregnant whilst having MdDS.

Pregnancy & MdDS

For more information please visit the Mal de Debarquement Syndrome Research Group Facebook Page Mal de Debarquement Syndrome Research Australia

Mal de Debarquement Syndrome and Hormones

You are invited to participate in a research study being conducted by Dr Cherylea Browne, Lecturer in Human Anatomy, School of Science & Health and Ms Josephine Canceri Student, Master of Philosophy Candidate, Western Sydney University. This research aims to contribute to the understanding the role hormones may play in the mechanisms of Mal de Debarquement Syndrome (MdDS). Specifically, this study seeks to collate data regarding the effects of hormonal fluctuations or conditions on MdDS symptoms in males and females, and pre-menstrual symptoms for females. We aim to collect saliva samples together with a symptom diary from both Motion-Triggered and Spontaneous-Onset MdDS patients.
We appreciate your willingness to partake in this study. Please be aware that prior to admission to the study group, you may need to answer some questions in order for us to assess your appropriateness for this study. This is necessary to ensure we have as diverse and well-represented patient pool as possible.

We are recruiting Males, Females, Spontaneous of Motion Onset, residing in Australia ONLY.

UPDATE:

We are still in need of the following MdDS participant types for this study we are running at Western Sydney University:
2 x Motion-Triggered Onset Males
2 x Motion-Triggered Onset Females – pre-menopausal
3 x Spontaneous/Other Onset Females – pre-menopausal
3 x Spontaneous/Other Onset Females – post-menopausal

For any inquiries or more information, please contact Josephine (18070095@student.westernsydney.edu.au) or Cherylea Browne (c.browne@westernsydney.edu.au) via email CLOSED

SYMPTOM MANAGEMENT SURVEY

You are invited to participate in a research study being conducted by Doctoral Student Viviana Mucci (University of Antwerp), Master of Philosophy Student Josephine Canceri and Dr Cherylea Browne from the School of Science & Health, Western Sydney University. This research aims to evaluate the symptom management strategies utilised by Mal de Debarquement Syndrome (MdDS) patients. Specifically, this study seeks to collate data regarding symptom management strategies used by the MdDS community in order to create a guide for newly diagnosed patients. We aim to collect survey data from officially diagnosed MdDS patients, both within the state, nationally and internationally. Please tag or share to anyone who might be interested in taking part in our research. Please follow the link below.

Symptom Management

CLOSED

UNDERLYING MECHANISMS of MdDS

Take part in a study to assist gain insight into factors which exacerbate symptoms. This may assist with help of managing symptoms and contribute to accurate diagnosis and guide research projects to further understand this condition.

If you fit the following criteria, please contact Ms Josephine Canceri 18070095@student.westernsydney.edu.au for more information.
1. You have had MdDS for at least 6 months
2. You are not on any form of hormonal contraception (e.g. oral contraceptive pill, nuvaring,implanon, etc.)
3. You are not taking an antidepressant or antipsychotic medication
4. You have not gone through menopause or in the pre-menopause phase.
5. You are not pregnant or plan to be pregnant during the study
6. Your MdDS onset was due to a motion event (e.g. cruising, air travel etc.) or non-motion event (e.g. spontaneously, or after surgery, childbirth, infection, etc.)

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